Six Main Areas, One System, One Goal: People Living with SCD
These six focus areas show Liverev's long-term plan. We are still figuring out the order, staffing, and timelines as our organization grows.
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Community outreach
SCD health education
MySickleStory research
Project STAR
Youth transition
Research support
Knowledge archive
Innovation hub
Green4Sickle
01 — Health education, genotype testing & referral networks
Bridging the genotype-testing gap and strengthening pathways to care.
Why it matters: many people live for years assuming a genotype they've never had formally confirmed — relying on unverified rapid tests or outdated results. A single reliable test changes how a person plans their healthcare and their life.
What we're developing: Project STAR — Sensitise, Test, Advise, Refer — a structured, repeatable pathway for genotype testing and counselling. Not yet operating at national scale.
What we aspire to build: standardised, quality-assured testing protocols and shared genotype data infrastructure.
A single genotype test reveals which pattern applies
02 — Adolescent & young adult SCD transition
Becoming a leading champion for adolescent and young adult SCD transition — without duplicating existing government frameworks.
We help adolescents and young adults with Sickle Cell Disease (SCD) transition seamlessly into adult care without duplicating existing government efforts. By partnering directly with young warriors and key stakeholders, we create tailored solutions that break down everyday medical, emotional, and practical barriers. Our human-centered approach provides complete support across seven key areas: ongoing medical care, self-management, mental health, personal identity, education, substance use, and structured mentorship.
03 — Research, knowledge & academic development
Working toward a trusted SCD research and knowledge institution for Nigerian and African evidence.
We are building a trusted research hub to collect and share reliable Sickle Cell Disease (SCD) evidence across Nigeria and Africa. Through our active MySickleStory initiative, we gather real-life experiences and promote genotype awareness while supporting students and researchers with grant writing, theses, and publishing. While we are not yet a formal research institute, we actively partner with researchers to share knowledge, translate data into real-world solutions, and build a dedicated SCD research archive.
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04 — Innovation, solutions, strategic partnerships & clinical research access
Liverev serves as a crucial bridge connecting patients (warriors), researchers, healthcare providers, innovators, institutions, and the biotech industry. We focus on identifying unmet needs and mapping out practical solutions, opening responsible pathways so cutting-edge health innovations and clinical trials reach the people who need them most.
05 — Sustainable finance, enterprise & social innovation
We build sustainable funding and business models to ensure our health programs have a lasting, long-term impact. Through corporate sponsorships and strategic partnerships, we secure vital support for our community outreach and campaigns. Additionally, our innovative Green4Sickle initiative turns waste recovery and recycling into renewable health-financing pathways, directly funding sickle cell care through circular economy solutions.
06 — Policy, advocacy, health equity & systems strengthening
We advocate for stronger, fairer healthcare systems to ensure everyone with Sickle Cell Disease (SCD) gets the quality care they deserve. By reviewing current health policies and partnering directly with government leaders and key stakeholders, we help strengthen health systems across the board. Our ultimate goal is to ensure all patients have equal, affordable access to proper care, standard treatments, and life-changing new therapies.
Pictures From Our Work
See moments from Liverev's outreach, education and community work.